- This list was compiled by Kathy Knight < kathy1024@WEBTV.NET. >
- She updates it periodically and puts it out on the BRAINTMR list.
- Subject: B.T. SURFING SITES - These are sites to start with, by no means a complete
list.
- I have reformatted the data, and added some
information.
"VIRTUAL TRIALS" AL MUSELLA'S SITE http://virtualtrials.com
(A great starting place for information)
The Healing Exchange Brain Trust T.H.E. BRAIN TRUST (includes the BRAINTMR list) http://www.braintrust.org
JIM KENZIGS SITE A list of brain tumor links (over 650 of them) http://www.virtualtrials.com/btlinks
DAN COLILLA'S BRAIN TUMOR INFORMATION WEB SITE Dan Colilla-- [father dx gbm] http://www.erols.com/colilla/
National Brain Tumor Organizations
The ABTA and NBTF will send booklets to brain tumor patients and their families.
- North American Brain Tumor Coalition
c/o Ropes & Gray, 1301 K Street, NW, Suite 800 East, Washington, DC 20005
Web: http://www.nabraintumor.org
- This is a coalition of many of the US and Canadian national brain tumor organizations
formed to present a brain tumor united front to our politicians.
- ABTA- American Brain Tumor Association, http://www.abta.org
- 2720 River Rd, Des Plaines, IL 60018 Phone: 800-886-2282 E-Mail: info@abta.org
ABTA PRIMER URL -- 7th. ed.http://www.abta.org/primer
NBTF-National Brain Tumor Foundation, Email: mailto:nbtf@braintumor.org
- Web http://www.braintumor.org
- Patient Services 800 934 2873
- Toll-free 800 770 8287
- East Coast Office West Coast Office
124 Watertown Street, Suite 2D 22 Battery Street, Suite 612
Watertown, MA
02472 San Francisco, CA
94111-5520
Phone:
617 924 9997
Phone: 415 834 9970
Fax: 617 924
9998
Fax: 415 834 9980
There are literature, counseling, pen pals, newsletters, phone pals, etc.,
available.
SOUTH FLORIDA BRAIN TUMOR ASSOCIATION Has many links to other sites -- http://www.angelfire.com/fl3/SFBTA
=======================
SECOND OPINION ARTICLE URL: http://cancerguide.org/second_opinion.html
=======================
Clinical Trials
http://cancer.gov/clinicaltrials/
http://clinicaltrials.gov
=======================
- Discounted Or Free Air Transportation
- Fri, 26 Apr 2002 from BRAINTMR
- From: David Edge <"mailto:d.edge@CODETEL.NET.DO">
Subject: Support: Dear Jenni;
- Free Airline tickets
A) Corporate Angel Network http://www.corpangelnetwork.org/
Provides free air transportation for cancer patients travelling to or from
recognized treatment centers in the United States, without regard to their
financial resources.
B) Airlifeline http://www.airlifeline.org
Airlifeline pilots assist ambulatory patients who must receive
life-sustaining treatment at a medical facility far from home and cannot
afford the cost of travel.
c) Aircare http://www.aircareall.org
- Alliance and the National Patient Air Transport Helpline (NPATH)
Using their own time and general aviation aircraft, pilot members of these
organizations help patients travel to medical facilities when financial need
or other compelling circumstances would prevent them from doing so otherwise.
D) Dreamline http://www.bobiverson.com/dreamline/
Our mission is to provide free airline / vacation travel for children
currently undergoing and/or recovering from a brain tumor, cancer, or
leukemia. Founded in August of 1998 by Robert A. Iverson, Jr., our program
is underwritten by individual and corporate sponsors who donate
frequent-flyer mileage, airline perks, discount coupons, travel vouchers,
special services, and cash contributions.
======================================================
Additional Resources
Cancer Fund of America- Provides all FREE basic living needs, shampoo, candy, toys,
clothes, advil, box floor fan and many, many other items. "http://www.cfoa.org"
Compassion Partners-Provides FREE tickets to any of the amusement parks, such as Disney,
Seaworld,Universal Studios, Islands of Adventure, Epcot. Must have "terminal" or
"life threatening" illness verified by your doctor. The number to call is
407-396-1114. The lady you need to talk to concerning these free tickets is Donna.
Bellsouth also offers approx. $12.00 off of your phone bill per month if you are on
medicaid.
Tim and Tom Gullikson Scholarship Foundation will give scholarships to children whose
parent/parents have(or had) a brain tumor.
"http://www.crossingthefinishline.org"- Will give FREE
1 week all expense paid to those with a diagnosis of cancer and their caregiver. Needs
verification by doctor. Children allowed if feasible.
Open to those only in the states of PA, NJ and DE. Must be between the ages of 18-50
years.
==========================================================
Sites about the end of life stages and the dying process:
"http://www.geocities.com/alamebrain2000/"
This one is from a BT perspective.
"http://www.crossingthecreek.com/"